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WELCOME to FPID.ORG
The official website of the Foundation for Primary Immunodeficiency Diseases.
Primary immunodeficiencies (PID) are inherited diseases of the immune system, which render these patients susceptible to serious, and often life-threatening infection and cancer. There are more than 10 million children and adults with primary immunodeficiency world-wide; more than one half million in the U.S., and more than a million in India. A large number of patients with PIDs are not even diagnosed. Generally, PID is more severe in children than in adults. In children, it is an immunological emergency and requires treatment (often hematopoietic stem cell transplantation) without which many of these children may not see their first birthday. In adults, it may take as long as 25 years from first symptom to making a diagnosis of PID. More than 300 different PIDs, and more than 400 gene mutations associated with or cause of PIDs have been reported. Application of GWAS and Exome sequencing has facilitated the identifications of various genes and PIDs. Prenatal and neonatal screening for PIDs has also help in identifying certain type of PIDs at an early stage so that they could be treated early with better outcome, often cure.
Though PIDs are 4 times more common than hemophilia, twice common as cystic fibrosis, and almost as common as multiple sclerosis, yet very few people and physicians know about PIDs. Therefore, there is a great need to educate the population in general regarding warning signs of PIDs, and practicing physicians to diagnose and treat these patients to prevent complications and death. In India, there are very few institutions where patients with PIDs are diagnosed or treated; the majority of patients remained undiagnosed and die, contributing in part to India’s high infant mortality rate.
Foundation for Primary Immunodeficiency (FPID) was established in the US to support the education, early diagnosis, genetic counseling, therapy, and research of PID in both India and the U.S. The Foundation supports many activities in the US and India (click here), and has established FPID Centers in India (click here)
The Foundation has established the Thomas Waldmann Award for Excellence in Human Immunology to recognize Dr. Waldmann’s contribution to primary immunodeficiency. This award is given annually to an outstanding immunologist/cell biologist who has made major contributions, directly or indirectly to primary immunodeficiency.
The Foundation provides supports for its activities from funds generated at the annual gala. The Foundation holds its annual black-tie gala banquet-entertainment fundraiser event at Island Hotel, Newport Beach, California in October-November. To receive more details about this event please contact Ms. Mitzi Vanhorn at firstname.lastname@example.org